Resources and Support
American Cancer Society 800/ACS-2345
The American Cancer Society (ACS) is a nationwide, community-based,
voluntary health organization dedicated to eliminating cancer as a
major health problem. ACS materials include pamphlets, booklets, brochures,
bookmarks and shower cards providing general information on pap tests,
and other cancer related materials. The ACS has materials in Spanish
and Chinese.
1599 Clifton Road, N.E., Atlanta, GA 30329-4251
www.cancer.org
Cancer Care, Inc. 800/813-4673
Cancer Care, Inc. is a national nonprofit agency dedicated to providing
emotional support, information, referral, and practical assistance
to people with cancer and their loved ones, at no charge. Cancer Care
has helped over a million people nationwide through its toll-free
Counseling Line, its teleconference programs, its office-based services,
and via the Internet. In 1944, Cancer Care was founded on the principle
that "living doesn't end when cancer begins." 1180 Avenue
of the Americas, 7th Floor, New York, NY 10036
www.cancercare.org
email: info@cancercare.org
CONVERSATIONS! The International Newsletter for Those Fighting
Ovarian Cancer.
806/355-2565
A monthly newsletter written by an ovarian cancer survivor, which
reports on treatment options, clinical trials, coping skills, and
early detection strategies, Conversations offers humor and an upbeat
tone. A networking service to match women in similar circumstances
is available.
P.O. Box 7948, Amarillo, TX 79114-7948
www.ovarian-news.org
email: CHMelancon@aol.com
National Ovarian Cancer Association (formally the Corrine
Boyer Fund ) 416/971-9800
The National Ovarian Cancer Association was established in 1996, as
Corinne Boyer Fund, to address the neglect surrounding the "disease
that whispers", ovarian cancer. NOCA is dedicated to overcoming
ovarian cancer, providing leadership by supporting women and their
families living with the disease, raising awareness in the general
public and with health care professionals, funding research to develop
reliable early detection techniques, improved treatments and ultimately,
a cure.
The Corinne Boyer Fund was founded by Patrick Boyer in memory of his
wife Corrine.
620 University Avenue, Toronto, Canada M5G 2L7
www.ovariancanada.org
email: noca@cancercare.on.ca
Gilda Radner Ovarian Cancer Familial Registry 800/OVARIAN
The registry tracks families with a history of ovarian cancer, and
offers a help line, education, information and peer support for women
with high risk (family history) of ovarian cancer.
Roswell Park Cancer Institute
Elm and Carlton Streets, Buffalo, NY 14263
www.ovariancancer.com
Gilda's Club 212/647-9700
The mission of Gilda's Club is to provide a place where people living
with cancer, their families and friends can join others to build social
and emotional support as a supplement to medical care. In addition
to the flagship facility in New York, there are Clubs in other cities
across the country.
195 West Houston Street, New York, NY
www.gildasclub.org
Gynecologic Cancer Foundation (GCF) 800/444-4441
GCF is a not-for-profit fund-raising organization established by the
Society of Gynecologic Oncologists (SGO) to support ovarian cancer
research, training of cancer specialists in laboratory research, and
a variety of programs for patient education and public awareness of
gynecologic cancers. Calls will enable an individual to obtain a list
of nearby specialists in gynecologic oncology, a nation-wide directory
of all SGO members, and informational literature. The GCF also sponsors
an interactive internet site called the Women's Cancer Network (http://www.wcn.org).
It offers understandable medical information about gynecologic cancers,
treatment options, and experimental therapeutic programs. By answering
specific questions a woman will be told her risk for developing specific
cancers such as gynecologic, breast and colon cancers, and how to
change those risks.
401 N. Michigan Avenue, Chicago, IL 60611
gcf@sba.com
National Cancer Institute (NCI) Cancer Information Service
800/4CANCER
A national central clearing-house, the NCI Information Services is
a practical first stop for those first diagnosed with cancer. Trained
personnel provide medical information by telephone related to specific
cancers, treatments, and coping strategies. Printed materials include
"What You Need To Know about Ovarian Cancer," lists of cancer
centers and clinical trial information.
cancernet.nci.nih.gov
www.nci.nih.gov
National Ovarian Cancer Coalition (NOCC) 888/OVARIAN
NOCC is a national membership organization with state chapters. Its
informational packet contains information about a wide range of ovarian
cancer issues and resources. NOCC promotes awareness and education
for the general public and medical community and funding for research
to find an early detection mechanism.
2335 East Atlantic Boulevard, Suite 401, Pompano Beach, FL 33062
www.ovarian.org
Ovarian Cancer National Alliance 202/331-1332
This national umbrella organization works to increase public and professional
understanding of ovarian cancer, and to advocate for more effective
diagnostics, treatments, and cure. Members include survivors and family
members, local and national organizations, and health care providers.
Materials include awareness information and national policy issue
papers. The Alliance sponsors an annual Advocacy Conference.
1627 K St, NW, 12th Floor, Washington, D.C. 20006
www.ovariancancer.org
email: ovarian@aol.com
Ovarian Plus: Gynecologic Cancer Prevention Quarterly 808/776-1696
The newsletter has timely information about international research,
diagnosis, and treatments for ovarian cancer and the other gynecologic
cancers. It targets risk reduction, screening, early detection, psychosocial
and policy issues, and addresses current events in the ovarian cancer
community. Published by a journalist with a strong family history
of ovarian cancer, it features a Medical Advisory Board of prominent
ovarian cancer researchers, and articles by medical writers.
P.O. Box 498, Paauilo, HI, 96776-0498
www.monitor.net/ovarian
email: ceil@kona.net
Ovarian Problems List
This email distribution list provides survivors, families and others
an opportunity to exchange information and support on a daily basis.
The list is not monitored for medical accuracy. The easiest way to
subscribe is to go to http://listserv.acor.org/archives/ovarian.html
OR you can subscribe by e-mailing listserv@listserv.acor.org . In
subject area, leave blank or type a dash. In message area, type "Subscribe
ovarian" and your first name and last name. For example, if your
name is Jane Smith you would type: Subscribe ovarian Jane Smith
SHARE: Self-help for Women with Breast or Ovarian Cancer
212/719-1204
SHARE is a not-for-profit organization providing information hotlines
for breast and ovarian cancer in English and Spanish; peer led support
groups; wellness, education and advocacy programs. SHARE contributes
to awareness regarding research, prevention and early detection.
1501 Broadway, Suite 1720, New York, NY 10036
www.sharecancersupport.org
Society of Gynecologic Oncologists (SGO) 312/644-6610
The SGO is a professional organization of specialists trained in obstetrics
and gynecology who subsequently took formal training (surgery, radiation
therapy, and chemotherapy) to become qualified to participate in all
effective forms of treatment of women with gynecologic cancers. Affiliate
members of the SGO are specialists in radiation therapy, medical oncology
or pathology who have particular interests and skills in gynecologic
cancer care.
401 N. Michigan Avenue, Chicago, IL 60611
www.sgo.org
The Ovarian Cancer Research Fund, Inc. (OCRF) 800/873-9569
OCRF is a not-for-profit organization dedicated to advancing and supporting
laboratory and clinical research that promotes the development of
new therapies and techniques for early detection, screening, and treatment
of ovarian cancer. As OCRF strives to find a cure, it also provides
educational outreach programs and public awareness projects, including
videos about ovarian cancer and resource materials.
One Pennsylvania Plaza, Suite 4800, New York, NY 10019
email: jlb@mwbhlny.com
The Sandra G. Davis Ovarian Cancer Research Program 713/792-2765
The Sandra G. Davis Ovarian Cancer Research Program at the University
of Texas M.D. Anderson Cancer Center, Houston, Texas was established
in 1996 to develop effective screening methods and a cure for ovarian
cancer through innovative research into causes, prevention, detection
and treatment. The Program is a multidisciplinary integration of patient
care and research initiatives. The program is comprised of three parts;
clinical care, community relations, and research. For more information
contact Raana Burnazian, Community Relations Coordinator.
1515 Holcombe Boulevard, Houston, TX 77030
U.S. Public Health Service's Office of Women's Health 202/690-7650
This office provides national leadership in advancing women+s health
through public policy, research, service delivery, and education.
It develops, simulates, and coordinates women's health research, health
care services, and public and health professional education and training
across the agencies of the Department of Health and Human Services.
Programs include eighteen Centers of Excellence in Women's Health,
which serve as models of integrated and comprehensive women's health
research and clinical services, including regular screening for breast,
ovarian, and cervical cancers.
200 Independence Avenue, S.W., Room 730B, Washington, DC 20201
www.4woman.gov
Gilda's Club Seattle
www.gildasclubseattle.org
Gilda's Club, a nonprofit organization named for Gilda Radner, the
comedian who died of ovarian cancer, offers a number of services to
people with cancer and their families and friends. These include support
and networking groups, lectures, workshops and social events.
The Seattle club, located at 1400 Broadway, has a monthly networking
group for women with gynecologic cancers, and another group for people
who are living with cancer as a chronic illness. Check with the club
by phone or on the web site for dates and times. (206) 709-1400.
Women's Cancer Network
www.wcn.org
The Women's Cancer Network is an interactive web site dedicated to
informing women around the world about gynecologic cancer. The Gynecologic
Cancer Foundation (GCF) and CancerSource developed the Women's Cancer
Network with an unrestricted educational grant provided by Bristol-Myers
Squibb Oncology.
Gynecologic Cancer Foundation Annual Report on Gynecologic Cancers
www.wcn.org/gcf/whatsnew/stateofthestate.htm
In September, the Gynecologic Cancer Foundation (GCF) released the
"State of the State of Gynecologic Cancers - First Annual Report
to the Women of America," detailing the most recent advances
in the detection and treatment of gynecologic cancers.
The report, which will be distributed by GCF each year during September,
Gynecologic Cancer Awareness Month, contains information about the
most common gynecologic cancers that affect women in the U.S.
The report can be read online, or to receive a copy by mail, contact
Dan Hewitt by e-mail at daniel_hewitt@was.bm.com or by phone at (202)
530-4695.
National Comprehensive Cancer Network
www.nccn.org
This web site has a treatment guidelines section for women with ovarian
cancer. www.nccn.org/patient_gls/_english/_ovarian/index.htm
The Center for Disease Control
The Center for Disease Control website has the 2004/2005 Ovarian Cancer
Program Fact Sheet in downloadable pdf format and information on CDC's
funded ovarian cancer research and activities.
Visit their site at: www.cdc.gov/cancer/ovarian/index.htm
Georgia Ovarian Cancer Alliance
The mission of the Georgia Ovarian Cancer Alliance is to promote awareness
among Georgia’s women and their healthcare providers of the
risks, symptoms and treatment of the disease in order to save lives.
Their Web site contains information about ovarian cancer, its risks,
symptoms and treatment. A list of Georgia's gynecologic oncologists
can also be found on the site as well as recent articles about ovarian
cancer. Visit their site at: www.gaovariancancer.org/intro.asp